About 70% of patients with orphan diseases remain at home, despite Russia’s war against Ukraine, the press service of the State Enterprise “Medical Procurement of Ukraine” reports on Tuesday.
State Enterprise “Medical Procurement of Ukraine” coordinates with organizations representing patients with orphan diseases to ensure their access to medicines.
As reported, Airbnb provides patients with rare (orphan) diseases leaving Ukraine with free housing for a period of a month. The project is part of a partnership with Airbnb, which runs a larger Airbnb.org program to provide housing for 100,000 refugees leaving Ukraine.
According to unofficial data and feedback from patient organizations, the majority of people with rare diseases remained in Ukraine, as they need additional support to leave the country.
In Ukraine, there are about 2 million people living with rare diseases (such as spinal muscular atrophy).
