About 70% of patients with orphan diseases remain at home, despite Russia’s war against Ukraine, the press service of the State Enterprise “Medical Procurement of Ukraine” reports on Tuesday.
State Enterprise “Medical Procurement of Ukraine” coordinates with organizations representing patients with orphan diseases to ensure their access to medicines.
As reported, Airbnb provides patients with rare (orphan) diseases leaving Ukraine with free housing for a period of a month. The project is part of a partnership with Airbnb, which runs a larger Airbnb.org program to provide housing for 100,000 refugees leaving Ukraine.
According to unofficial data and feedback from patient organizations, the majority of people with rare diseases remained in Ukraine, as they need additional support to leave the country.
In Ukraine, there are about 2 million people living with rare diseases (such as spinal muscular atrophy).
Airbnb provides patients with rare (orphan) diseases leaving Ukraine with free accommodation for a period of one month, the European Organization for Rare Diseases (EURORDIS) reported.
The press release notes that the project is being implemented as part of a partnership with Airbnb, which is running a larger Airbnb.org program to provide housing for 100,000 refugees leaving Ukraine.
EURORDIS will collect information on the situation of migrants with orphan diseases and their short-term housing needs. Based on this information, Airbnb.org, after reviewing the request, will issue a voucher for booking accommodation through its platform.
The European Organization for Rare Diseases EURORDIS brings together almost 1000 patient organizations in 74 countries.
In Ukraine, there are about 2 million people living with rare diseases (such as spinal muscular atrophy).
